Thank goodness! What has happened to people’s lives that there’s developed all this jargon.It defies all reason as to why we don’t have the same features in our lives as the rest of us. Yes – that’s not to deny extra help some people’s communication needs may need but why do we not find ways for this to be as usual as possible. I have address books and calendars, diaries and even a file with my household bills etc in – but they wouldn’t be out on display either. PLEASE please can all services not think a lot harder about how they do support people’s lives! This is a good example…..

Love, Belief and Balls

I remember moving into my first flat at 20. One of the real joys was putting my own stamp on the place. Mark making his mark. Like all teenagers, my bedroom at my parent’s house was the space to express me but a whole flat was a much bigger space to fill.

I’ve had this very much in mind over the past few weeks during the move to Steven’s new house. I saw as my main task, how to help him create his own space.

Alongside the move, I’m aware that I’ve become obsessive about living as “normal” a life as possible. This puts me on a collision course with two of the themes I write about a lot – how (useful) services don’t exist anymore and how the social care system likes to frame the life of a learning disabled system. The latter theme covers a wide ground from…

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Doing It

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It’s so unhelpful and damaging when people are presented as objects of pity or problem. Many many years ago Mencap ran an advert showing I think he might have been called Simon as a pitiable picture – but they did see sense and change this. We do see so much better pictures of achievement these days. So much more powerful are the results of the right support – with help people’s talents can thrive, their contributions can be made and they (and their families) can develop good lives. Noone would deny the amount of effort that is needed for some people’s lives to change nor the amazing contribution of families to make this happen – far and beyond anything we might expect. However, surely we should be telling people what helps make it happen – not have people feeling they must contribute as it’s so awful. It’s the damage this does to all people with labels to make things so much harder due to the prejudices this feeds on. We should be presenting what’s possible with help not the worst moments of some. We also fail to help people understand what we might be like did we have some if the experiences people have had simply because of the lack of help and understanding. No wonder we get so little urgency to get people him from ATUs – we will make people imagine the worst unless shown the real picture. AND some of us might find ourselves locked up had we the same weight of prejudicial attitudes on us, the lack of understanding and with less resources and no power to change things.

Love, Belief and Balls

You either do it or you talk about it (passionately).

The NAS have launched their Christmas 2016 campaign. Here is the launch photo:


Anyone got any idea what the message is? Autistic people and their families have shit Christmases? Sibling’s lives are ruined? I haven’t a clue what the message is.

But let’s make a donation anyway.

In the meantime, I (amongst several other campaigners) am still blocked by Jan Tregelles, the CEO of Mencap. It’s no big deal. The corporate Mencap world is about as far away from my world as it is possible to be. If I am passionate, it must be a very different kind of passion:


As long as the big national charities continue their idea that their role is to give learning disabled people a voice, we’re fucked. Always on the outside looking in. Always the victim.

Two stories of people having a voice:


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Act against the 21st Century institutionalisation of people with learning disabilities — Big Society, Disability and Civil Society Research

Support the #7Daysofaction on twitter – Monday 18th April 2016 by Dan Goodley In 1993 I graduated from Manchester Metropolitan University with a psychology degree. My Mum and Dad were very proud. I was … unsettled. Not simply by the prospect of post-student life but by the discipline of psychology. One of the things I […]

via Act against the 21st Century institutionalisation of people with learning disabilities — Big Society, Disability and Civil Society Research